Judah was diagnosed with NEHI (Neuroendocrine Hyperplasia of Infancy) at 6 months old. It is such a new disease (only being known as NEHI and classified that way since 2005) that there are still many unknowns about it, including whether or not genetics play a part in this disease or if it's caused by environmental factors. Even though he has outgrown most of his symptoms of NEHI, it is a disease that he will have for his whole life. We pray that one day there will be answers to so many questions that we have about it. Research being done now will benefit the future of NEHI! 
 

Please join us as we support the NEHI Research Foundation, through participation in the Million Dollar Bike Ride, to raise money and awareness for NEHI. 

Research being done now could impact future generations on NEHI kiddos, including maybe one day Judah's own children. It would be wonderful to know the cause and if there can be a cure so no more kids have to endure the trials that Judah faced.

NEHI Research Foundation is excited to announce that it has been selected to participate in Penn Orphan Disease Center’s 7th Annual Million Dollar Bike Ride taking place on June 13th, 2020! This is an incredible opportunity for the foundation and its community to raise awareness and fund meaningful research. Learn more about the event at: www.milliondollarbikeride.org

What is it?

This will be the Penn Orphan Disease Center’s (ODC) 7th Annual Million Dollar Bike Ride. While the ODC is dedicated year-round to supporting rare disease this is a once a year opportunity for rare disease groups to work directly with them on their mission. The event normally takes place in Philadelphia, PA but due to the COVID-19 pandemic they will be conducting the event as a virtual ride. Riders will ride in their own communities on Saturday, June 13th to support their respective rare disease groups!

​Why is it important?

As a selected foundation not only will we get to ride in the race and raise awareness for NEHI we will get to partner with the ODC to put out a pilot grant. The ODC will match up to $30,000 for each individual team participating. Not only that, they put out the call for applications internationally then use their in-house scientific advisory board to award the one with the highest scientific merit. The NEHI Research Foundation will set the parameters for what we’d like to support but the ODC does all the work for us. This means that every donation that is made (up to $30,000) will be matched dollar-for-dollar and will be directed to the grant to be issued by Million Dollar Bike Ride. Help support NEHI Research Foundation today and have your contribution go twice as far!